Thursday, March 18, 2010

Changing Blog To Private

I've decided to change this blog to private because their are so many jerks out their lately who think it is funny to take pics of kids with down syndrome and make a mockery out of them.  So if you want to continue to do view the blog, email me at jedmunds02@yahoo.com and i will be happy to give you authorization to do so.  It makes it easier if you have a google account, but if you don't you can still view as a guest, but after 2 weeks you have to get a new request from me.  I know it may seem silly but i really don't want everyone to have access to my girls pics(esp Kylee) and make a joke out of them. 

Oh and today Kylee is 9 months old.  She is still doing great.  She had her swallow study done and it showed reflux and that she does aspirate on thin liquids(which means some of it goes to her lungs).  So we just have to thicken her formula and just keep working on strengthing her oral muscles.  Since we have thickened her formula she has actually started to take a lot more formula, which is great.  Speaking of Kylee, gotta go, stinker thinks it is time to get up after only a 20 min. nap!

Sunday, March 14, 2010

Look Who's Sitting!



She has been sitting unsupported for a couple weeks now.  She still is a little wobbly, but will balance herself well.  She also has been working on moving around the room by way of rolling around and pivoting herself by using her tummy and her hands.  We have been working on getting in the crawling position but it's very hard to get her hips to stay together.  She also likes to scoot backwards.  Poor Kate, she can't have anything of hers within Kylee's reach anymore, otherwise Kylee gets it and Kate says, "no, no, no."  Not much else going on here, just the usual busy appointments.  We have added 2 other dr's for Kylee to see and one other therapy.  Thankfully the therapy is at home.  She went to see the eye doctor and we found out that she is farsighted in the left eye and has an astigmatism,  so her right eye is stronger than the left and we have to keep an eye on it and follow up with the eye dr in a couple months.  She said it isn't to the point where she needs glasses but may need them in the future.  She will also be going this tuesday for a swallow study test.  This will tell if she is aspirating at all when she eats which can be more common with babies with down syndrome and also it will check for reflux which she has been spitting up alot lately.  Next week she will go and have another hearing test.  This time she will be sedated as it is more accurate.  She initally failed in her left ear and it was thought to be due to fluid in her ear, so we will find out and then after that the ENT dr. will determine if he wants to place tubes in her ears.  She is also going to be seeing an orthopedic dr for a few reasons, but mainly for the shape of her head due to the fact she has always preferred to have her head tilted to the one side(which i can't think of which side it is now).  We have been doing stretches and getting her on her stomach as much as possible and her neck muscle has gotten stronger but we need to see if the dr thinks that the shape of her head will correct itself over time.  Hopefully it will.  Because of this the rest of her body has shifted and her physical therapist recommended getting her spine and hips checked out.

Sorry for all that boring stuff, but that is how exciting things are around here.  Kate is still loving to play pretend with her dolls.  In fact she asked me the other day if when she was 10 if she could have a baby!  She was disappointed when i told her no.  She has been excelling at school(if there is such a thing at pre-k).  Her teachers are very impressed with how much she can read, as we are too.  In fact i am trying to get her transferred to a different school when she goes to kindergarten as the school that we are in the district for is very old and has mold problems, but her teacher had said that the she would be alot more challenged at the newer school.  A couple of the teachers have even said that if she were tested right now, she would be at a first grade level.  I don't know where she got her smarts from, but there definitely not from me. We are thinking it is because she is a lefty.






When i asked to take Kate's picture she immediately starts posing!