The Many Faces Of Kylee

Kylee is such a happy, easygoing baby.  She is always smiling, talking, laughing, and never really cries. 





We think Kylee has been teething because her gums are swollen, she is constantly drooling, and we think we can see the 2 teeth underneath the gums.  Plus she is always chomping on anything that comes into her mouth.

We started cereal a month ago, but she only had it a couple of times just to experiment.  Well, this past week at feeding therapy we gave her some and she now has gotten the hang of it and loves it.  In fact if she sees us eating she will get real antsy and will stare intently at us putting the food in our mouth.  When she does eat the cereal she makes the funniest faces.

Kylee had an appointment with the pediatrician yesterday.  She actually just needed to get her RSV shot which is something she will get every 28 days until March and it gives her the antibodies to fight off RSV.  RSV is a common upper respiratory infection which really is just like a cold, but for heart babies, preemies, or babies with lung disease it can cause complications.  She weighed 13lb 4oz and the dr. said she sounded good despite having a cold, which she got from Kate.

Speaking of Kate, we have been playing more games with her and have discovered that she does not have the concept of how to play these games with others.  Apparently, she thinks that she should be the one to win all the time.  I was bowling with her and I knocked down all the pins to which Kate replied "you are cheating"  but apparently it was not cheating when her turn prior she knocked down the remaining pins with her hands.  She is a very poor sport and keeps telling us we are cheating and at one point when she was losing, she told me "winning is great and cheating is losing," and then she told me "i'm losing my brain, how does this happen?"  When she wins or "thinks she wins", she will point at you and say "I won, into your face" 

Phil took her to Target yesterday and let Kate show him all the toys she wants for Christmas.  Well she should have just showed him what she didn't want.  So, I hope Santa Claus(grandmas) has lots of money :)

Stroller Recall

For some reason my husband wanted me to post this info.  Like I have a ton of people who read my blog AND actually purchase strollers, but whatever.

Maclaren stroller company announces huge recall

Stroller company Maclaren USA announced a huge stroller recall this morning affecting more than 1 million strollers after a dozen reports of children's fingertips being amputated when they put their hands into a side hinge.
Our colleagues at the Consuming Interests blog give us the full details.

The recalled strollers include 11 different models, details of which can be found at the company website www.maclaren.us/recall or by calling (877) 688-2326. The products were sold from 1999 through November 2009 at stores like BabysRUs for $100 to $360.

Just Because They Are Cute

Future Telemarketer

Quit Your Whining

Lately, when I am feeding Kylee I spend this time on the computer as it takes her a while to eat, although lately it's decreased from 45min- 1hr to about 30 min.  Anyway most of my time on the computer is reading other blogs about down syndrome kids mostly heart babies/kids.  There are a ton of blogs out there to read and although I have tried to read about kids who have the same 2 heart defects combined, I have only found a few of those out there.  So I usually end up reading blogs of kids with different heart defects, but for all the parents the emotions are pretty much all the same.  I know for myself it is quite scary to think about what Kylee will have to go through and it makes me pretty emotional sometimes.  Anyways, some of what these kids and families have to go through is more than I can imagine- complications from surgery, multiple surgeries, waiting for organ(heart) transplants, spending countless hours pretty much living in the hospital, and the unthinkable- losing your child.  You are probably wondering the whole point of this post by now.  Well whenever I feel like I am having a bad day, or have a headache or whatever else, I can't help but think of all that these kids have to go through.  Sure it is emotional for the parents, but the child is the one who has to suffer all the physical pain and yet they are such troopers.  So if you feel like you are having a bad day, think of these kids and quit your whining!

The Many Quirks Of Kate

The things that comes out of Kate's mouth sometimes is funny.  I'm not quite sure where she learns some of the stuff, although I'm sure she probably has heard a few things around here. 

Yesterday, she was on the trampoloine with Phil and she wanted him to jump with her.  Seeing that there is a weight limit, he told her he was too big.  Her response was " come on fat boy, you can jump."
This morning, Phil was changing his shirt and Kate said, " I see your boobies."  Daddy says, "oh yea."  She says, "say, no those aren't my boobies"  Daddy says, "then what are they?"  Kate replies, "your nickles"
The other day I took her to dance and she very seriously said, "Hey, I thought Barbie was going to take me."  She has been having more imaginary friends/animals lately.
She likes to run around in circles and fart and say, "ooh, I got the running farts."

Everyday, she is saying new things that make us wonder where she heard these things or how she knows so much.  She really is such a smart, sweet little girl!

Pics

Lately, Kylee has sucking on her tongue which sounds like she is chewing on gum.  I actually got a few pics where she doesn't just stare at the camera.

Comments

I don't expect a whole lot of people reading this blog but for anyone that does and would like to leave a comment, thoughts, words of encourgements, etc, etc, there is a spot belong the posts to do so. Just curious to know who is following up on this.

Cardiology Visit

Kylee had a visit with her cardiologist today and it was pretty uneventful, which is a good thing.  Dr Herlong said she is doing great.  She is up to 12lb 13.5oz and her oxygen sats were at 90, which is really good.  At her last visit the cardiologist said she would have an echo done, but Dr. Herlong said since she is doing well from a clinical standpoint (meaning she is gaining weight, no change in color, no problems with feeding, etc.)then there was no need to have one done.  Although I was sort of looking forward to see if there were any changes going on in her little heart, I was happy to not have to wait around any longer than we already did and to know she is doing well enough in his eyes is reassuring.  So now the only thing the Dr said to do until her surgery is to keep from getting sick.  This information should be passed along to his nurse/assistant.  For some reason she felt the need to try to kiss Kylee.  I probably wouldn't care too much, but come on it is cold and flu season and lady you work with kids that have heart problems. If they get sick, it is far worse for them than other kids.  I'm guessing she probably doesn't know this seeing as she always refers to my child as "him."  Other than that she is very loving, but just in the wrong way.  We don't follow up with the Dr. until 1 more month, yea!

Did You Know?

Just something to think about.

Did you know?

* Congenital Heart Defects are the #1 birth defect.

* About 8 in every 1000 babies (almost 1%) are born with a CHD.

*Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for CHD. * not minimizing the need for any pediatric cancer research*

*Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood.

And We're Rolling!

Ok, we aren't, just Kylee and she isn't exactly rolling all over the place, but either way it's still pretty exciting.  She finally figured out how to roll onto her back everytime you put her on her tummy.  The first time she did it she had a look of shock on her face like she was wondering what had just happened.  I know it may seem minor to some parents, but for us because of her down syndrome and her heart defects(which can cause delays due to exhaustion) it is pretty cool!

How Did This Happen?

My little sweet babycakes is not a baby anymore.  In 3 months she will be 5.  Even though she can get an attitude and she sometimes has a hard time listening, she is so sweet.  She will tell me every day when I pick her up from school, " I love you"  She can always make us laugh with some of the stuff she says or does like lately she will run up to us and say, "hey, what's that?" and then she farts.  She loves to sing and dance and just started dance school.  She is so smart- she can write all her letters, she can spell some three letter words, she can recognize a ton of words and she knows way too much about the internet.  In fact, most of her christmas list is probably from toys she found online.  You can tell her once how to do something and she remembers.  I was looking for something once and she said, "you go to google first".  It's amazing that this little baby is not a baby anymore.

this is just a proof of Kate's pre-K pic

Trying To Roll Over

Kylee has been working at rolling from her tummy to her back.  She can get from her tummy to her side but can't quite get to her back.  She tries so hard that I don't think it will take her much longer.

At this point I think she is saying she has had enough.

Kate's School Fall Festival

Kate had her school fall festival yesterday.  She had tons of fun playing games, jumping on the bounce house, getting her face painted, and she even got to ride on a horse.

Kate with her teacher Mrs. Courtney, who she just loves.  Everyday she has to go back to her class to  give Mrs. Courtney a hug.

Here she is with her boyfriend, Joseph.  She says she just loves him.  Everyday when it is time to leave they chase each other around to give each other a hug.  When Kate was out sick for a week poor Joseph asked the teacher every day if Kate was coming back to school.  They are so cute!

My mom managed to get half of a smile from Kylee.

Lies, Lies, Lies

So, today Kate tried to pull a fast one on me.   I was making cookies for Kate's school and I needed to refrigerate the dough.  Well I told Kate she could get a drink for herself.  I could see she was standing at the refrigerator longer than usual and could tell she was eyeing up the dough.  So I asked her what she was doing and she just told me she was getting some juice.  I thought I would watch her to see if she would try to sneak the cookie dough.  She didn't know I was watching her.  When she closed the door I could tell she had something in her mouth.  I asked her again what she was doing.  She said, "i'm just getting some juice."  So I said, "is that all your doing?'  Kate says, " I was getting some juice see."  as she is showing me her juice with a funny look on her face.  I said " you know when you tell the truth you won't get in trouble.  It's not nice to lie."  She says, " I know it's NOT nice."  I then looked in the bowl and asked her if she got into the bowl which then she broke down and repeatedly said, " I'm so sorry."  It was quite funny even if she is a little young to lie like that.

A Few Pictures

My cousin, Anna took some pics yesterday of the girls and thanks to grandma, Kate loves to pose for the camera.  Here are a few pics that we took of Kate.  Kylee, on the other hand wouldn't cooperate.