Tuesday, April 27, 2010

Cardiology, 10months, Teeth, And Photo Shoot

Kylee had her 3 month post op checkup with the cardiologist on 15th.  I'm happy to say there really isn't much to say.  The cardiologist said from a listening standpoint everything sounds good and all her stats were good.  He did mention that the little chunker may be gaining too much weight, but i don't think so.  She weighed 18lbs which is 3 more than what she weighed right before surgery, plus she is only in the 20th percentile for typically developing babies.  We follow up with him in 3 more months and at that point they will do a sedated echo to get a really good look at how her heart is functioning.  Overall a great appointment. 

Kylee turned 10 months on the 18th.  It is hard to believe that in 2 months we will be celebrating her 1st birthday.  Where does the time go?  She amazes me as well as her therapists at how much she is progressing.  Every week when the therapists see her she has improved greatly.  She has figured out how to go from laying down to sitting up, although not the way we would like her to, but nonetheless she has figured it out.  It makes her therapist cringe when she sees her doing it.  She will get her legs spread all the way like she did a split and then push herself up.  Since she already has problems keeping her hips in line, this is why the therapist doesn't like it.  Oh well.  Since she has figured this out, nap time has become fun for Kylee.  She usually will sit in there for awhile just playing with her animals before falling asleep.   She has started to figure out how to scoot around really awkwardly with one leg tucked underneath her.  She is also bearing alot of her weight when in the standing position with assistance.  We have been working on her fine motor skills and she has picked up these things fairly quick.  For example, we have been working on some simple signs, like more(since you can't feed her fast enough) and she can do the sign, as well as clap and wave bye-bye.  Just in the last week, I have been trying to get her to say Mama(just the sound) and she picked it up within the week.  As usual, she is still soo happy except she has been a little fussy on an off, but she just got her second tooth.

Speaking of teeth, Kate has her first loose tooth.  She was so excited when she realized this, but now, she is not anxious for it to fall out.  She could care less when the tooth fairy comes.  She had her adenoids out last Tuesday and did great.  She will still complain that her neck hurts(which i guess is common), but other than that, it hasn't really bothered her.

Sunday, the girls had a photo shoot.  I found this awesome organization called Littlest Heroes Project.  It is made up of photographers all over the us and other countries that donate their services for free to kids 18 and under who have had serious illnesses or disabilities.  As usual Kate loved posing for the camera and Kylee was more interested in trying to eat the grass than look at the camera.  Here is a link to a few of the pics that our photographer, Melody took.  http://snookysmilesphotography.blogspot.com/2010/04/beautiful-inside-and-out-baby.html.

Here are a few other random pics of the girls.

I ordered this cute shirt from another mom with a child who has down syndrome








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