My Two Silly Girls

So after reading what other moms had to say about keeping their blogs public, I decided for now just to keep it public.  I have been thinking with the large amount of unborn babies with down syndrome who are aborted, it would be good to show how having a child with down syndrome, although a little extra challenging, is such a blessing!

So, the past few weeks have been busy as usual with appointments and therapy.  Kylee is doing great!  She had her hearing test a few weeks ago and she passed in both ears!  She initially failed in the left ear, which was thought to be fluid, but there are no signs of fluid, so no tubes for now.  In a few weeks, Kylee will be getting a cranial band(helmet) to help correct the shape of her head, plus the main reason we decided is due to the asymmetry in her face.  It is very apparent in the mirror.  So she will have to wear the band for a few months.  Since we started thickening up her formula she has become a piggy when it comes to eating, even with solid food as soon as the spoon leaves her mouth, she starts whining.  She loves to eat and of all things, she likes spicy things, hot sauce, mustard, onions!  She finally got her first tooth about a week ago and is working on another one.  As far as developmentally, she is amazing her therapists.  She is on the verge of crawling.  She will rock back and forth on all fours, but when she goes to reach for something she does a belly flop.  If you help her she can move forward a little without flopping.  She has also learned to drink from a straw, which may sound silly, but for kids with low muscle tone, it's a big thing.  She will hopefully be starting with occupational therapy in the next 2 weeks, which will help with working with her hands, such as feeding herself and will help with doing some sign language.  Thursday is Kylee's 3 month post op appointment with the cardiologist, so we're hoping for some good news.  As usual, she is such a happy girl, in fact we went to a little get together for the down syndrome association here in charlotte for new parents and of all the babies, she seemed to be the happiest one.  She has even started to play little games where she tries to kiss your cheek, but as she is going in for the kiss she makes this playful "i'm gonna get you" noise. 

As far as Kate, she is as goofy as ever.  Every day, she is somebody different.  It can even change throughout the day.  She has many different characters she likes to pretend to be, from Sonic the hedgehog, to all different types of animals, Hannah Montana and sometimes she wants you to call her Frank even when we are out in public.  She's such a funny girl.  She has been doing amazing with her reading skills.  Every other night she has to read a book and she knows almost every single word, even complex words.  We went to the school where she will be starting Kindergarten in the fall.  It's a newer school, which is very nice, plus i love the fact that it has a great special needs program for preschoolers.  She is soo excited because this Saturday she is going horseback riding with her friend Megan and then she is having her first sleepover with a friend from school.  Since Kate has been constantly sick, which the doctor thinks because her adenoids are enlarged, it has been contributing to this.  She will have them removed next Tuesday.  So we're hoping this does the trick and will hopefully lessen the amount of times she is sick. 

Here are a few pics of the girls, I've really been slacking in the pic department.  Kylee loves to interact with Kate.  She talks to her, trys to grab her hair, smiles at her constantly and will just stare at her. It's so cute to see them interact with each other.

trying to grab Kate's hair

not sure if she is talking or yelling at Kate

always posing

here's a cute quick video of Kylee trying to get Kate