Despite being irritated, Kylee has been doing well. They extubated her today.(took her breathing tube out), they also disconnected the external pacemaker, as well as took out her chest tubes. She has handled it well so far even though when she isn't medicated enough she gets mad. She is on the nasal cannula with 1liter of o2. Apparently kids with down syndrome have a harder time getting settled. They are working on getting her lungs clear and doing chest therapy. I'm trying not to get my hopes too high because i know setbacks can occur, but so far so good.
Thank you for all the prayers, thoughts, encouragement! It is definitely appreciated. Please continue to pray that she does well.
Still praying that she recovers as well as she went through the surgery!
ReplyDeleteWe will definately keep the prayers going. I am so happy the surgery went well and pray that the next few weeks will fly by(so Kylee will heal)and you can get back to life at home with your family. Sending prayers and love !!
ReplyDeleteLove,
Paul & Stacy